Living with ALS

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Synopsis: This is a story of pain, agony and torture suffered by those afflicted with ALS. It is also a story of hope, love and inspiration. There has been a heightened awareness about this illness recently but much is left to be understood about it. There is still no cure for it. While it is a limited recollection of my personal experiences and in no way presumes to represent what every person with the disease goes through, I hope this book adds a little more to the body's knowledge of the disability and loss endured with this progressive and fatal disease.

Autobiography: Dr. Okey Nwangburuka was diagnosed with ALS at the peak of his career while enjoying excellent health. A husband, father, physician, and entrepreneur, his life changed drastically as the disease progressed. Originally from Nigeria, he emigrated to the USA in the mid-nineties and now lives in California with his wife and four adorable young children.