A Journey of the Heart: Learning to Thrive, Not Just Survive, With Congenital Heart Disease

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She wasn’t supposed to live. Her mother heard those words but they shaped the daughter’s life. The extent of her heart problem was undiagnosed until she was an adult and after her lifelong dream of attending the United States Naval Academy was shattered. She was diagnosed with a rare congenital heart disease. Ebstein’s Anomaly. Congenital heart disease is the number one birth defect in the United States. Living with one of the over 30 kinds of congenital heart diseases is tough. Feeling alone with congenital heart disease is even tougher.

This is one woman’s story about thriving, not merely surviving with congenital heart disease. With grace, humor, and honesty she tells what is was like growing up with congenital heart disease, the challenges she faced, and the obstacles she has overcome. She encourages readers to view their personal challenges in a positive light to uncover ways they can be of service to others, and live a meaningful, robust life. Come along for the journey, and be inspired to live your best life, no matter what difficulties you may be facing.