Reaching for Normal: A Mother’s Memoir of Raising a Child with Brain Cancer and Chronic Illness

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When Amy and Dave learned that their six-month-old daughter, Emily, was diagnosed with a slow-growing brain tumor, they were devastated. Throughout her childhood, they managed their daughter’s complex cancer, all the while striving just to be an ordinary, normal family. In doing so, Amy kept her emotions close and plastered on smiles, some genuine, as she worked in between cancer clinic appointments, had another baby, and attended cul-de-sac potluck dinners. The smiles were harder to put on when Emily suffered from a massive stroke just before her 8th birthday. Amy suddenly found herself a parent to an active toddler and an almost eight-year-old who could no longer talk, walk, or feed herself. Emily’s spirit remained shockingly unscathed. In the end, it was she who reminded the family to laugh, smile, and finally accept that they were anything but ordinary. This memoir of motherhood at its hardest reveals what went on behind closed doors and beneath the smiles, as Amy writes in raw, honest detail about her relationship with her spouse, juggling work demands, raising her typically developing son, and finding lasting friendships throughout each of Emily’s setbacks.