Locked-In Syndrome after Brain Damage: Living Within My Head

Barbara Wilson,Paul Allen (Associate Professor, Middle Tennessee State University),Anita Rose,Veronika Kubickova (Oxford Institute of Clinical Psychology Training, UK)

Locked-In Syndrome after Brain Damage: Living Within My Head
Format
Paperback
Publisher
Taylor & Francis Ltd
Country
United Kingdom
Published
25 July 2018
Pages
94
ISBN
9781138700406

Locked-In Syndrome after Brain Damage: Living Within My Head

Barbara Wilson,Paul Allen (Associate Professor, Middle Tennessee State University),Anita Rose,Veronika Kubickova (Oxford Institute of Clinical Psychology Training, UK)

The newest title in the series Survivor Stories, this book tells the story of Paul Allen, a photographer who likes opera and was a good baritone singer. At the age of 56 he sustained a stroke that left him paralysed and speechless. He has Locked-In Syndrome (LIS), a rare consequence of brain damage. Although Paul is fully conscious and his cognitive abilities are intact, he is unable to move or speak due to the paralysis of nearly all his voluntary muscles. However, Paul is keen to communicate and through his eye movements he tells his story, from his early life, career, singing and other interests, to the details of his stroke and the effects it has had on his life. The book also includes contributions from Paul’s wife Liz, who tells the story from her point of view, along with Paul’s physiotherapists, occupational therapists, speech therapists, psychologists and others from the Raphael Hospital who have assisted in Paul’s rehabilitation. In telling of his frustrations, his successes, his views on life and how he sees his future, Paul raises awareness of the quality of life possible for those with LIS.

Combining scientific knowledge with personal narrative, this unique and optimistic book is of huge importance to any professional involved in the care of someone with a brain injury, and to the individuals and families touched by LIS.

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