Terry Cohen, a young adult with Myotonic Dystrophy never wrote a book, and then after graduating from high school, he decided to write one dedicated to all young people with progressive disabilities and seeking a full life.

Terry writes– he has a disability and disease inherited from his mom, and must face it every day of his life. As a teen, he struggled the most, and then it hit him– My disability isn’t in charge of my life. I am.

It was up to Terry to make his life worthwhile, despite all his problems.

Here are just a few of the skills he writes about:

–Getting doctors to stop talking over your head and scaring you

–Finding healthcare buddies who really care about you, not just treating your disability

–Making good friends

–What to do when people don’t give you a chance or expect next to nothing from you

–Having fun; enjoying your life despite your limitations

–Achieving the goals you set for yourself

–Living the life you want