Running The Coast For A Cure: One Man’s Journey For His Niece With Sturge-Weber Syndrome

An extraordinary and inspirational journey to make a difference!In 2014, Al DeCesaris set out on a 1,935-mile solo run from Lubec, Maine to Key Largo, Florida. He ran to bring hope to his 10-year-old niece Jenna who suffers with Sturge-Weber Syndrome, a rare and life-threatening neurological disorder. He ran to create awareness and raise funds for medical research so a cure can be found.For three consecutive months, he battled the rigors of the road, endured numerous injuries, encountered wild animals, and narrowly escaped getting hit by more than a few reckless drivers. Yet, he also experienced the generosity of strangers, had heart-warming interactions with families affected by this devastating disorder, and came to realize - with purpose, determination, and belief - even the seemingly impossible can be achieved.Running The Coast For A Cure is one man’s journey to make a difference for his niece. Told with humor and warmth, Al candidly captures the adversity he faced and the joy he experienced as he ran close to a marathon a day through 14 states down the East Coast. His journey of love and hope will have you running with him, and leave you inspired.