Haemophilia in Aotearoa New Zealand: More Than A Bleeding Nuisance

Julie Park,Kathryn M. Scott,Deon York,Michael Carnahan,Jan-Willem Andre de la Porte

Haemophilia in Aotearoa New Zealand: More Than A Bleeding Nuisance
Format
Paperback
Publisher
Taylor & Francis Ltd
Country
United Kingdom
Published
30 September 2020
Pages
238
ISBN
9780367662349

Haemophilia in Aotearoa New Zealand: More Than A Bleeding Nuisance

Julie Park,Kathryn M. Scott,Deon York,Michael Carnahan,Jan-Willem Andre de la Porte

Haemophilia in Aotearoa New Zealand provides a richly detailed analysis of the experience of the bleeding disorder of haemophilia based on longterm ethnographic research. The chapters consider experiences of diagnosis; how parents, children, and adults care and integrate medical routines into family life; the creation of a gendered haemophilia; the use and ethical dilemmas of new technologies for treatment, testing and reproduction; and how individuals and the haemophilia community experienced the infected blood tragedy and its aftermath, which included extended and ultimately successful political struggles with the neoliberalising state. The authors reveal a complex interplay of cultural values and present a close-up view of the effects of health system reforms on lives and communities. While the book focuses on the local biology of haemophilia in Aotearoa New Zealand, the analysis allows for comparison with haemophilia elsewhere and with other chronic and genetic conditions.

This item is not currently in-stock. It can be ordered online and is expected to ship in approx 2 weeks

Our stock data is updated periodically, and availability may change throughout the day for in-demand items. Please call the relevant shop for the most current stock information. Prices are subject to change without notice.

Sign in or become a Readings Member to add this title to a wishlist.