Beyond Autonomy: Limits and Alternatives to Informed Consent in Research Ethics and Law

Beyond Autonomy: Limits and Alternatives to Informed Consent in Research Ethics and Law
Format
Hardback
Publisher
Cambridge University Press
Country
United Kingdom
Published
3 October 2019
Pages
226
ISBN
9781108491907

Beyond Autonomy: Limits and Alternatives to Informed Consent in Research Ethics and Law

Respect for autonomy has become a fundamental principle in human research ethics. Nonetheless, this principle and the associated process of obtaining informed consent do have limitations. This can lead to some groups, many of them vulnerable, being left understudied. This book considers these limitations and contributes through legal and philosophical analyses to the search for viable approaches to human research ethics. It explores the limitations of respect for autonomy and informed consent both in law and through the examination of cases where autonomy is lacking (infants), diminished (addicts), and compromised (low socio-economic status). It examines alternative and complementary concepts to overcome the limits of respect for autonomy, including beneficence, dignity, virtue, solidarity, non-exploitation, vulnerability and self-ownership. It takes seriously the importance of human relationality and community in qualifying, tempering and complementing autonomy to achieve the ultimate end of human research - the good of humankind.

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